Cystic fibrosis used to be and still is to a degree a fatal disorder. It used to kill people while they were infants, now because of modern medicine the average life expectancy is in the late thirties. It affects the respiratory system and the digestive system. The main complication that people face is difficulty in breathing.
In my own life experience, I have been blessed to have excellent health for someone with cystic fibrosis. However, because of that, I’ve always felt guilty. I never felt like I could talk about it because I didn’t think the experience was mine to claim. There are people out there that struggle way more than me, so I never wanted to be a face in any way for the disorder, I didn’t think it was my place.
I’ve learned over time that because of my good health it’s even more imperative for me to speak up and spread awareness. There are people with voices that may not be able to be heard because they’re too sick to go out and be heard. I don’t want that to be the case anymore. I want there to be a cure, and this video is one step in seeing that become a reality.
I went to lunch with one of my mentors one day, and they told me that awareness for cystic fibrosis is good, but what’s awareness without funds? The sad reality is that finding a cure for this disorder is expensive. The whole world could know and care about those with CF, but if no money is donated to the cause of finding a cure, it will never happen. Billions of dollars have already gone towards research, and more is needed. I want to help be a part of the reason a cure is found. I hope you do too. If you go here and buy a “Breathe” shirt, some of the proceeds will go towards the Cystic Fibrosis Foundation to find a cure, I would appreciate it more than you know.
[uxi_video id=”vshBkWebciI” size=”450″ type=”youtube” ratio=”16by9″ center=”false” related=”false”]
One day, I know I won’t be sick because of cystic fibrosis anymore. One day, I know others won’t be either. We’ll lead healthier lives and be better able to affect those around us positively. Help me make that change a reality.